Tag Archives: Obstruction

The waiting game.

2 Nov

So Tuesday is my procedure date. It cannot come soon enough and a decent sized meal has been calling me for weeks now.

I just want to be able to enjoy my food again without pain and hassle. My obstruction is become increasingly aggravated as the days go by, even with just eating little and even when I had soup last night. Bring on Tuesday & hopefully the solution to this obstruction.

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An update on the outcome of recent hospital visits…

25 Oct

Hi readers! 🙂

Sorry it’s been a while, had so much going on in the way of Uni, health and a few problems.

To update you all, I’m having a flexi-sigmoidoscopy with bowel dilation on the 6th November to widen the kink in my bowel. The surgeon said it’s now not to have thought to have been caused by adhesions, but is simply just a kink in my bowel that can hopefully be sorted with this procedure whilst I’m put to sleep. He said I could be in a bit of pain when I wake up, but hopefully this should solve the problems and obstruction. If that doesn’t work, I’ll have to have my stoma redone but he said hopefully it won’t come to that and he’ll do everything he can to make me better. Top guy 🙂

Hope you are all well! I’m currently staying at my boyfriend’s in Wales for a few days as I’ve had a few stressful and upsetting issues involving people at my University accommodation which isn’t helping my current health situation and stress levels. I can’t honestly believe the extents some people will go to to harass and make other people’s lives a misery. That’s all another story I guess! At the moment taking a quick break from University work on Educational Policy! Better get back to it…Fun times!

Just thought I’d update you all and check in! 🙂

Until next time,

Amy & Stacey Stoma xxx 🙂

Contrast Enema X-Ray Appointment

12 Oct

So that’s that appointment done & dusted!

It was nowhere near as bad as I was expecting it to be. They inserted a catheter into my stoma on the end of a fairly long tube and then I had a bag of clear fluid (the contrast) that they fed into my intestine slowly and watched it move through my intestine on the screen, which was really interesting to watch to be honest. They kept taking pictures and waiting for it to move along to the extent they needed it to go, which was quite a way through my small bowel. I didn’t even feel the catheter be inserted into my stoma to be honest, or much going on! The only little bit of pain I got was cramping near where they suspect my narrowing/partial obstruction to be, otherwise, it felt a bit cool and made my tummy rumbly like I was really hungry, it wasn’t uncomfortable at all.

Sporting the standard hospital fashion 😉

It took about 15 minutes all in all, and I was pleased with how I managed it and how easy it was. After they had got the pictures they needed, the tube was taken out and I waited for the contrast dye to make it’s way out, which took quite a few minutes to start, but they suspect that’s because of the narrowing I have in my bowel, most possibly caused by scar tissue. My stoma was surrounded by a plastic cover and long bag for the liquid to drain into which I just emptied down the toilet then took off about ten minutes after once there was a break in the liquid draining for me to quickly get one of my own bags on! 😀

Results basically seem that apart from a few centimetres behind my stoma, my small bowel looks healthy and how it should. Got to go for my follow-up next Friday, so we will see where that leads from there!

This afternoon, I am back at my University accommodation. I am a bit sore near where they suspect my narrowing and little bits of the liquid are still coming out. On painkillers and taking things easy. I think a chill-out night is in order!

Thanks for all your well wishes and lovely messages 🙂

Fall down seven times, stand up eight.

22 Sep

…At least, that’s what I keep telling myself. I’m having quite a blip at the moment, but before I go into that, I’ll tell you how I’m getting on at University.

University so far is great. I am really enjoying myself, and although I’m ill at the moment and have had a few problems, I have enjoyed a few nights out and have been getting to know some lovely people. I have told a few people about my ostomy, and they have been very interested and supportive.
I’ve got my timetable, and besides the 8pm finish on a Tuesday, everything looks pretty gravy baby, as some would say! Looking forward to getting started & into the work now, although, I will probably regret saying that when I’m stressed up to my eyeballs in work in a few months time! My accommodation is lovely, I really like it and I am so glad I opted for en-suite as it makes my life so much easier.

So, about this blip…Well, if you’ve been following my blog, you will know that over the past few months I have been having problems with partial blockages and pain when food is coming through Stacey. This pain came to an absolute high the other night. It all kicked off when I got chips on the way home from a night out, and didn’t chew them properly, which set off the pain, then 4/5 days later, I’m still in agony, even after the chips have passed through. It gets worse every time I eat, but I have the appetite of a very large pig at the moment, so this really isn’t ideal. I rang my stoma nurse up on Wednesday, having tried to have put up with it and sit it out, but it was all getting too much to handle, I’ve had Crohn’s since aged 7, so I definitely know when something is wrong with my body and have learnt to trust my instincts now. I’ve been getting a huge amount of pressure behind Stacey which has been very painful after I’ve eaten, it’s been at it’s worst on a night when I’ve obviously got all my meals going through me from the day, but I never really put food and the pain together until I saw my stoma nurse and the Prof who did my operation yesterday. Stacey has been finding it hard to push things through, and I’ve been getting build ups of food behind my stoma, especially behind her at the top and right hand side (as I’m looking at her) which I have been having to massage and squeeze to get food through, unfortunately with great pain involved. I’ve also been feeling sick when I’ve had stomach pain, very close to actually being sick on a few occasions and have been feeling very faint and generally out of sorts. Stacey has been nipping and wriggling no end on my stomach and swelling then shrinking daily as my food has been working it’s way through and bending over to pick something up or getting dressed has been so painful. So yes, I gave in, I’d had enough, and off up to the hospital I went with Mum yesterday morning.

On arrival, we went to the Outpatients’ Reception where I had to wait for my stoma nurse, and I sat huddled over in the chair with my Mum rubbing my back, in pain and wanting to fall asleep from hardly any sleep the night before from the pain. Then, it was in to see my stoma nurse. She checked Stacey and managed to get her finger down her and said she looked and felt fine. However, we were both still very curious as to why I have been getting so much pain, so she went to get a surgical registrar to have a look at me, especially as I had said that the pain had got so bad the night before that I had nearly got my Mum to take me into A & E. To my surprise, the Prof who did my operation came through the door to see me, as he said he wanted to check me himself and sort me out, which I thought was lovely. I trust him 100% with my problems and know he will do whatever he can to make me well, he is fantastic and I know he has my best interests at heart, as any good medical professional should. He asked me about my symptoms etc and within very little time diagnosed me. I have a partial obstruction in my bowel, just behind my stoma, due to scar tissue, he says it is extremely likely.

Even when I have problems, I am still so thankful for Stacey and the great medical team that I have 🙂

All the things he was describing and my symptoms go hand in hand, and I was pleasantly stunned at how quick he came up with some answers for me, I actually said to him, “That’s the man right there!” :D, with a big smile on my face at how I’d gone from worrying what was wrong to getting some answers so quickly. The obstruction in my bowel from adhesions (scar tissue) has most likely made a kink in my bowel not far from the mucosal junction (where Stacey comes out of my skin on my stomach) that is made worse by food. I am now on a liquid diet for 2 days to see if that eases it to help secure the diagnosis, and so far, I’ve had very little pain compared to what I was having the day before yesterday on a normal diet. I have to go back for a few tests soon, one being an x-ray of my stoma with dye injected into Stacey to try and find out exactly where the obstruction is. Otherwise, I am not entirely sure on the other tests, although there was mention of me maybe benefiting from a camera down my stoma to have a better look at things.

We will find out soon when I get my letters through, then I will be going for the results to see Prof again in a few weeks time. After these few days, it’s a very low residue diet for me and taking things very carefully. Then, once I get my results, we might be able to sort things with diet, pain relief or I might have to have another operation, which could lead to more scar tissue, it’s all a vicious circle really and neither outcome is exactly brilliant. On the plus side, at least now I have some answers, and also, I no longer have to dilate my stoma as the Prof said Stacey isn’t the problem, it’s my obstruction making things painful and dilating will not help. I am very low on energy, coming down with a cold, and really not in the mood for all of this struggling and pain. I have just started University…and I have been through enough pain in my lifetime, but obviously, these things just have to test me and see how strong I really am.

These things come to try us.

& even in pain, I still try to see things positively 🙂