Tag Archives: Inspirational

Another year with Stacey complete!

30 Dec

Hi readers,

I hope you all had a good Christmas!

I thought with it being the penultimate day of the year I’d do my final post of 2013 and just summarise how the year has been for me living with a stoma.

Compared to the many years of being ill before, it has been a great year for me & I have accomplished even little things that I could have never dreamt of before having my surgery, such as eating a full meal, having a good night’s sleep free of pain and planning a trip out that doesn’t revolve around toilet stops! I’ve had Stacey for 2 years and nearly 5 months now – time flies!

I have only really had a few minor issues with my stoma in 2013; these being the muscle cramps behind it which I got prescribed tablets for, really thick output, my iron levels and more recently, a few irritating bag leaks. Luckily, I haven’t suffered that much the last month or so with the muscle cramps but when I do I find that the Alverine I was prescribed really helps. I also had a few weeks where my output was uncomfortably thick – I felt like it was really struggling to come out at times and it made me feel really clogged up inside. This seemed to pass within a week or so by minimising foods that bulk you up such as carbohydrate-rich foods like pasta and potatoes and making sure that I had plenty of clear fluids. I also found fizzy drinks helped too with the high sugar content and gas to push things through. My iron levels I have always struggled with, before and after surgery. When my Crohn’s Disease was active I suffered with Anaemia of Chronic Disease; this is anaemia usually typically found in those with chronic health problems/disease and/or those with inflammation present in their bodies, usually in higher quantities, such as in moderate-severe Crohn’s Disease in the intestines. There are many ideas and or arguments into understanding what causes anaemia of chronic disease I understand but it seems to be that there are more than likely a few or several contributing factors to it, such as diversions of iron in the body or problems with iron stores due to disease. I had my iron infusion a week and a half ago now and so far haven’t noticed a difference, but I was told it can take up to a month in some people for them to start noticing the benefits or even longer, so fingers crossed that I do start to notice. In the New Year, I will be organising a blood test to check my iron stores within my body again and see how much the transfusion has helped internally. On another issue, the past few weeks I have had five bag leaks, which is a lot for me considering up until then I had only had a handful over the first few years. I can’t really think of what has caused them; my guess being that my stoma has been a bit up and down in size and the fact that I’ve not checked enough that the adhesive ring of the bag that fits around the stoma has not adhered to the skin properly due to me either being in a rush or not getting it properly over my stoma all the way round, causing output to leak underneath. The Coloplast bags themselves that I use are great and are very secure – the adhesive is the best I have found and works well for a lot of people I know with ostomies compared to other bags. Despite these issues, I would not swap having my stoma for the world because it really did save my life, no exaggeration about it. The issues I have encountered are extremely minor compared to what I have had to deal with before.

2013 has also introduced me to more inspirational people who amaze me with what they cope with and still manage to smile. I have spoken to many going through surgery and kept in contact with those I have known before this year and every one continues to amaze me and really inspire me with the things they achieve, no matter how small the things may seem to them. The positive attitudes of these people is really inspiring and shows you that no matter what tries to stop you, you deserve to reach your dreams just as much as anybody else, in fact, if anything, more than your average person.

For 2014, I saw a really good idea on the internet the other day that would help a lot of us, especially for when you have your down days. At the start of January, buy a jar or find a box (doesn’t have to be huge) and when something good or positive happens, no matter no small, write it down on a small piece of paper, fold it up and put it in the jar. When you feel down or downhearted, open the jar and read what you have accomplished so far; the more you get, the more you will smile and the more it will remind you just what you can achieve and why you should smile. What a lovely idea! 🙂

December 2013 :)

December 2013 🙂

Before I finish my last post, here’s a big ‘thank you’ to all those who have supported me this year, it means a great deal to me! Here’s to all the ostomates out there and the inspiring and beautiful ladies on the ‘Osto-MY fashion’ group on Facebook and my co-admins; Gemma, Amber and Becky – lots of love to you! Also, here’s to my Uncle, I miss you so much & you inspire me every day.

I hope you all have a fab New Year and that 2014 is a truly great year for you all; make it your year!

Thank you to my readers for all your continued support and I hope you continue to enjoy reading.

Best wishes & Happy New Year!

Amy & Stacey Stoma 🙂 x x

Ostomism Not Pessimism ™ 

Dec 2012

December 2012, a year flies!


A tribute to a wonderful girl.

27 Jul

Alison was such an inspiration to me. The first time I saw a picture of her I noticed her glowing smile that could light up a whole room, and just how much of a beautiful girl she was. The fact that she had a bag didn’t even occur to me until I studied the picture more, and when I saw her bag, I just thought “Wow, she is beautiful, she is proof that we can be proud of our ostomies!”. 

I then read more into her story, and wow, what an inspirational girl. She had been through so much, yet was still smiling and putting her effort into helping other people. Alison helped to give me strength and reassurance that things were going to be okay when I was really ill and just after my surgery. Jess, & Alison, from Uncover Ostomy have made so much difference to my life, it’s amazing. 

Alison was a fighter, determined to make out of life what she could with such a horrible disease. To have an ostomy bag is something to be proud of, she helped me to realise. Unfortunately, as much as she embraced having an ostomy bag, it didn’t work for her, and she had her ostomy reversed. What hell she had to go through brings tears to my eyes, it really does. We all go through such hell with Inflammatory Bowel Disease, admittedly in different extremities, but Alison had to suffer with IBD in such a horrible way, to an extent than more of us have suffered. She had countless operations, and had to undergo yet another operation recently.

Tragically, things didn’t work out for her and she ended up in hospital on a life support machine, just enough so her family & friends could say goodbye to her. I can’t believe I am writing this…It is so so sad and there is a place in my heart that feels numb, I will miss her. I look at her photos and the things she did and it inspires me so much to carry on raising Ostomy Awareness for her and to be proud. She will always have a place in my heart. I wish I’d told her just how much she has helped me and still does.

For Alison to be forced to leave in such a cruel way is just so unfair I cannot put it into words, let along at such a young age. Her memory will definitely live on & she will carry on inspiring people for many generations to come.

Rest in Peace, Alison. ♥