Tag Archives: cosmofer

A rough start to the year.

21 Jan

Hey readers,

I hope you’ve all had a great start to the year and have had good health. To those of you that are having problems or who are unwell or in a dark place at the moment, I hope you get better really soon and have the courage to keep on pushing on with it.

The beginning of the year for me has been tough but I am still pushing on with it and trying to get through the tough times. We had to have one of our dogs put down recently and obviously that was really upsetting and a hard thing to have to decide, but it was for the best. I think that’s the thing with pets; as heartbreaking as it is to have to decide to let them go, you can’t keep them on the planet for your own happiness. They can’t tell us how much they’re suffering so really we just have to go on our instincts and veterinary advice because from our dog’s tests and how she was behaving she was clearly in pain and unfortunately wasn’t going to make a recovery. I guess we focus on the time we had with her and the fact that we gave her a good life, despite her passing away at the age of 7, which is quite young for a dog. If they had also found out about her health problem before she was rehomed with us, they would not have rehomed her and she would have had to stay in kennels or be put down, so I guess that’s another saving grace in the sense that we gave her a happy life and a safe home. She was so cute and had the softest ears ever. Rest in Peace Daisy ♥ ImageOn the health side of things, I was welcomed into the new year in style in the first week of January with the start of a Crohn’s flare-up. Going two years and four months without one in itself though is an amazing thing for me as it’s the longest I have ever gone since being diagnosed without having a flare-up. It started with stomach pain which was really grating and uncomfortable and really tiring then it just got worse and my appetite decreased to the point where I could not even eat a snack or half a meal before the pain kicked in and I chose not to eat to combat the pain. Even smelling food gave me stomach ache, which is what made me go to the doctors because to me that is a tell tale sign of my experience with Crohn’s. I also felt really sick and very fatigued. Stacey was very loud and unhappy and I had a lot of output which was like water and increased amounts of it. I had urgent blood tests done at the doctors and got the results back in the next 24 hours and they showed that my C-Reactive Protein (Inflammation) Markers were sufficiently raised, so my GP put me on 30mg steroids straight away for a week and luckily this seemed to get the flare-up under control before the Crohn’s really set in and needed further treatment.

At present, pain-wise I still get the odd stomach ache daily and still feel quite tired and achey some days but my appetite is back to normal, if not more; I’m always really hungry at the moment! I also feel that my iron infusion has probably started to kick in as I don’t find myself wanting to sleep now in the day or suddenly feeling the need to sleep at any point before. I don’t feel like I’m running on empties energy-wise at the moment which is good. If anything, I struggle to sleep now!

Until next time,

Best wishes from Amy & Stacey Stoma x x

Had my iron infusion!

18 Dec
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Dad asked if I wanted a photo for my blog before he went back to work so here it is! 😀

Hey readers,

Just got home from having the day in hospital for my iron (cosmofer) infusion. To start with I had a weaker dose for an hour, then had an hour break and was monitored. If you’ve never had an iron infusion before, like me, they give you the weaker dose to start with to see how your body reacts to the iron itself and almost weaning you on to it, as oppose to giving you the stronger, full dose all in one at a faster infusion rate.

My first dose: looks like watered down Coca-Cola!

My first dose: looks like watered down Coca-Cola!

I only experienced a few symptoms mildly; a drop in my blood pressure, developed a bit of a high temperature and felt a bit light headed but these soon wore off after I’d been taken off the first infusion within about 15 minutes. For somebody of my age, the nurse said it was expected to have a drop in blood pressure and that this is what happens with a lot of infusions of different medications.

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The second dose.

After that I had the stronger dose which took about an hour and forty-fiveminutes to infuse then half an hours observation afterwards. I felt a lot better on this one, despite being a bit apprehensive about it after feeling a side effects with the weaker one. I had a joke with the nurse that it looked like she had poured the Coca-Cola that I was drinking into the infusion solution bag and that I was going to keep telling myself it was Cola to take my mind off it 😀 As I understand it, the infusion rate is dependent on factors such as your weight, how your body reacts to the treatment and whether you have had it before or not.  Throughout the infusion, they also check your blood pressure, pulse and temperature; usually in half-hour intervals. From my experience, you can also eat and drink as normal throughout and I did not have to fast or anything to prepare for it. The only thing it required was to stop taking iron tablets five days before the infusion, but I wasn’t on them anyway myself.

I’m feeling a bit like I’m on another planet at the moment and exhausted but hopefully the infusion will start to work in the near future. I’ve been a bit clammy and had a bit of stomach ache and a temperature and have had a few dozes on the sofa tonight!

Best wishes from Amy & Stacey Stoma x x