Tag Archives: colitis

Crohn’s & Colitis Awareness Week

30 Nov

Spread the awareness!

Here’s to everyone affected by IBD and those that have tragically lost their lives due to it or related complications. Here’s to my Uncle, my reason for my strength and courage and to not let IBD win & help others with their pain, I miss you & you will always be my inspiration.

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World Ostomy Day 2013

5 Oct

With it being World Ostomy Day today, I thought I’d do a post basically just giving a big shout-out to all ostomates; past, present and future ostomates.

I still have my up and down days with mine and have had a few issues with partial blockages behind my stoma and pain recently but on the whole I am extremely thankful for having my stoma. It gave me my life and meant that I met some amazing, courageous people who have every reason in this world to smile and be proud of the struggles they have got through. When I’m having my down days, I always think of my Uncle who still continues to be such an inspiration to me. My IBD Story page is at the top right for those who want to read it and see just how far I’ve come 🙂

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I’m still struggling with my anaemia and my body’s dislike to iron, which is not ideal. At the doctor’s this week so hopefully some progress will be achieved there. I’m feeling really low in energy at the moment and find it difficult to concentrate so hopefully things will improve.

I hope my readers are happy and healthy and to those who are struggling or need a talk; never hesitate to drop me an e-mail, the address is in my ‘About Me’ section or just fill in the contact form below.

Best Wishes from Amy & Stacey Stoma 🙂 x x

Ostomism not Pessimismâ„¢

Bag odour.

21 Aug

Hey readers, I hope you’re all doing well & I send hugs & wishes to those of you going through a tough time at the moment.

I’ve decided to do a post on bag odour as I know it is an issue which effects every ostomate at some point or another, some more than others. 

Personally, I find that there are certain foods in particular that give me bad odour and sometimes a lot of wind too, but with foods I haven’t tried it is always trial and error really. 

The main foods I can think of that give me odour are Fish, Eggs, Mince, Indian Food, foods with a lot of flavour enhancers in and I’m sure a few more will come to mind as I eat in my daily life. Fish & eggs are the worst, and I also find that green vegetables and onions tend to give me more wind than most foods. Fish literally smells like it did before I ate it, as do eggs (sorry if too much information!) so if anyone else has this, then you are not alone! I’ve gone off fish since this happened last time as it took about three days for the smell to shift fully from my bowel, not the most pleasant of smells. 

I have found a great product that works for getting rid of odour which you place within your bag. This is particularly handy for when I’m staying away, on nights out and going out and using public toilets if I’m paranoid about leaving a smell in the toilet. I use an ostomy deodorant called No-Roma by Salts Healthcare, which you can buy in two sizes; a big 227ml bottle which I usually leave by the toilet at home or take away if I’m going to be away for more than a few nights, and a small 28ml bottle which is perfect for carrying around with my spare stoma supplies in my handbag on a daily basis. The deodorant itself does not have a fragrance, but seems to work by acting on the odour-producing bacteria (as explained in the Salts product guide). You simply add one or two drops of the deodorant into the bag, via the outlet which you use when emptying your bag, before going out and when out and you come to empty your bag so you have odour protection until you empty your bag the next time. I find the product very effective and it has made my life so much easier and given me a lot more confidence about going out with my bag and using public toilets.

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The dogs & me.

Today, I have been into town with my brother then we spent some time relaxing in the garden with our dogs; Bobby & Daisy. I wore my stoma vest with a tight fit vest top over that and some jeans. My stoma vest allows me to feel confident to wear the clothes I love to wear.

Best wishes until next time!

Amy & Stacey Stoma x x

 

Prepare for a rant.

19 Aug

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SO angry right now. What actually possesses people to create or think this sort of thing?! I have a blog on Tumblr (some of you might have heard of it), just a general blog on my interests etc, and I am so fed up of seeing this come up on my dashboard. There are no words quite clear enough to describe just how plain rude and disgusting this behaviour is.

Many things are going through my mind right now after seeing this countless times, and in all honesty, I just want to explode with anger. For one, these ‘people’ obviously have no insight into what it is like to have a relative or somebody they care about suffer and not be able to help, or even suffer from anything themselves. How narrow minded can people actually be? It totally baffles me the levels some people will stoop to. Utter idiots, in fact, that term isn’t anywhere near strong enough, but I’ll leave that one to your imagination.

One person wondered why I cared about this sort of thing. Truth is, of course I care! I have a stoma and know many people with stomas, or who need stomas/have had stomas. The LAST thing people need to see before surgery or at any stage in their recovery is something like this. It is unnecessary and totally uncalled for. No, stomas aren’t the prettiest things to look at, I admit that, but I have seen worse things to look at. Who cares if they aren’t pretty or whatever word you want to use, seriously? Do you seriously expect that something that comes out your body to excrete waste is going to be covered in glitter, multicoloured and aesthetically pleasing?! Oh, come on, please! What angers me is when people totally refuse to understand the concept of stomas or that they actually save lives and help people…They are that shallow that they make a judgement on how something looks, just because it’s a bit different and something you might have not seen before? Do people wear their stomas out for everyone to see their waste coming out?! No, I think you’ll find that’s what stoma bags are for, if people actually had the decency to even try and understand and see over their own love for themselves, ignorance and overly-magnificent egos, and not magnificent in the positive sense. People act as if we ask for this sort of ignorance and cruel comments.

Not highlighting any subjects specifically, but in today’s society, if other subjects that are a bit risky or different were discriminated against, nobody would even allow for that to happen and they’d be made to never forget the fact that they said what they said, and in some cases, even imprisonment. I don’t think anybody should be discriminated against, just because they are different. We live in a society that is multi-cultural, multi-faith, has a wide range of backgrounds that people come from, different sexualities, different interests…Really, people are still going to be so rude? This is one of the reasons I do this blog, for Ostomy Awareness, because there needs to be way more awareness about stomas and Inflammatory Bowel Disease. It is amazing how many people I talk to who have, or know people, with stomas and/or Inflammatory Bowel Disease, yet the awareness is miniscule compared to other matters. The same goes with a lot of other illnesses that people don’t even try to understand because of the lack of support and awareness.

Even after my rant, I will say one thing, and that is that stoma or not, illness or not, with everybody’s individual differences, we should be allowed to live a life without unnecessary, cruel discrimination. The worse thing is, is that our society is like this now, and to be honest, I dread what it will turn into for generations to come if this carries on. We shouldn’t have to feel disgusted at ourselves for having a stoma, in many cases that saved our lives. We should feel proud.

Ostomism, not Pessimism™ 🙂

Oh, and Karma will probably come back round… 🙂

A tribute to a wonderful girl.

27 Jul

Alison was such an inspiration to me. The first time I saw a picture of her I noticed her glowing smile that could light up a whole room, and just how much of a beautiful girl she was. The fact that she had a bag didn’t even occur to me until I studied the picture more, and when I saw her bag, I just thought “Wow, she is beautiful, she is proof that we can be proud of our ostomies!”. 

I then read more into her story, and wow, what an inspirational girl. She had been through so much, yet was still smiling and putting her effort into helping other people. Alison helped to give me strength and reassurance that things were going to be okay when I was really ill and just after my surgery. Jess, & Alison, from Uncover Ostomy have made so much difference to my life, it’s amazing. 

Alison was a fighter, determined to make out of life what she could with such a horrible disease. To have an ostomy bag is something to be proud of, she helped me to realise. Unfortunately, as much as she embraced having an ostomy bag, it didn’t work for her, and she had her ostomy reversed. What hell she had to go through brings tears to my eyes, it really does. We all go through such hell with Inflammatory Bowel Disease, admittedly in different extremities, but Alison had to suffer with IBD in such a horrible way, to an extent than more of us have suffered. She had countless operations, and had to undergo yet another operation recently.

Tragically, things didn’t work out for her and she ended up in hospital on a life support machine, just enough so her family & friends could say goodbye to her. I can’t believe I am writing this…It is so so sad and there is a place in my heart that feels numb, I will miss her. I look at her photos and the things she did and it inspires me so much to carry on raising Ostomy Awareness for her and to be proud. She will always have a place in my heart. I wish I’d told her just how much she has helped me and still does.

For Alison to be forced to leave in such a cruel way is just so unfair I cannot put it into words, let along at such a young age. Her memory will definitely live on & she will carry on inspiring people for many generations to come.

Rest in Peace, Alison. ♥

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Video

The end result of the ‘NHS Advances in Stoma Care’ video I got to be part of.

19 Jul

So here is the link to the final version of the video on Stoma Care, that I worked on with Comfizz. It was such an enjoyable day & I am so pleased with how the video has come out!

More than anything, I am honoured to be part of taking those steps further to raise Ostomy Awareness and to help represent such an amazing, friendly and supportive company; Comfizz.

You can check out their stoma support garments at: http://www.stomawear.uk.com/

For the full article, go to: http://www.edirecttv.co.uk/videos/nhs-advances-in-stoma-care/

I am so pleased I got such a wonderful opportunity! 🙂

One step further to Ostomy Awareness!

Attention J-Pouchers!

11 Jul

Top Photo: Meg (Left) & Me (Right) (: ♥

So I’m doing a blog post to ask those who have a J Pouch/have had J Pouch surgery to please let me know. I have an amazing friend, Meg Price, who writes: http://www.stanleystoma.wordpress.com, who has just had stage 1 of the J Pouch operation. She would really benefit from talking to those with experience of the J Pouch as she is feeling quite lonely and finding things very tough. If you could please let me know if you’d be willing to talk to her by commenting on this or by joining ‘My Bag & I’ on Facebook and letting us both know, that would be great. She doesn’t have much opportunity to get on the internet at the moment, so if you could please let me know and I will get in contact with her.

Any help is much appreciated. She is an amazing, inspirational lass and I really want to help her in any way that I can. Nobody should ever feel alone. She is a true fighter and I am very proud of her, those who know her will know she is such a lovely girl. Please help me support her. We love you Meg ♥

Thank you for reading ♥