About Me

Hiya, I’m Amy & I’m 21 years old. I have a permanent Ileostomy.

I was diagnosed with Crohn’s Disease at age 7, going on to have a diagnosis of Severe Crohn’s Colitis (Crohn’s of the large intestine/colon instead of Crohn’s, as it is typically known, in the small intestine) aged 17.

I underwent Panproctocolectomy Surgery August 2011 –>Permanent Ileostomy formed – ‘Stacey Stoma!’ πŸ˜€ During my surgery, they discovered a large mass on my Transverse Colon, which left me within inches of my life and meant that surgery took longer. If I hadn’t had my surgery then, chances are it would have burst and done some serious, threatening damage. I am SO lucky to be here! πŸ™‚

I am currently studying my A Levels via a distance learning college to get the grades I need to go to University in 2014 to hopefully study Medical Biology or Bio-medical Science. It gets me down sometimes that I was too ill to complete my A Levels at school but then I just feel lucky now that I do have the second chance to complete them again πŸ™‚

I enjoy going out for meals, seeing friends, spending time with my family, shopping, singing, photography, doing my hair and make up :D, going to concerts & gigs, blogging, music, studying, going for walks, evening walks on the beach, kicking Crohn’s Disease in the backside πŸ˜€ and helping other people.

This blog is about my experiences living with my stoma & also covers general things as well about my life & my interests. Questions about IBD and my life in general as a young person with an ileostomy are welcome, as well as comments you have about my blog, but please be constructive! πŸ™‚

If you would like to get in touch with me, please feel free to e-mail me: amyrobson09@googlemail.com.

Thanks! πŸ™‚

Everything you see on this site, is owned or copyright to me, unless stated otherwise, thanks! πŸ™‚

24 Responses to “About Me”

  1. Sun May 12, 2012 at 4:14 pm #

    Hi

    I discovered your blog today and I’ve realt enjoyed reading it. I have so many questions regarding a stoma. Is it possible for u to contact me via email please. Would really appreciate it and I won’t ask too many questions. Thanks x

  2. sdempster July 12, 2012 at 9:08 am #

    Hi Amy. I have just discovered your amazing blog today and would like to ask if I may include a link to it on my own blog?

    • staceystoma July 12, 2012 at 11:25 am #

      Hi there! Of course, that would be great! πŸ™‚

      • sdempster July 12, 2012 at 11:36 am #

        Aw thanks πŸ™‚ Will let you know when I get it done. Thanks again and take good care of yourself.

      • sdempster July 12, 2012 at 2:22 pm #

        Thanks again for your kind permission. That’s your sooper dooper mention, links and otherwise, now posted to my blog πŸ™‚ Take care. x

      • staceystoma July 12, 2012 at 10:34 pm #

        Wow, thank you! πŸ™‚ x

  3. iamfabx July 12, 2012 at 8:40 pm #

    Hey girl, really inspiring story. Been having a couple of bad days but your page & blog stories have proved me to get back involved in my blog. My e-mail address is ‘raiseawarenessibd@hotmail.com’ if you’d like to write to me:) I don’t have an ostomy but were both young, so lets share stories! X

    • staceystoma July 12, 2012 at 10:35 pm #

      Hey there, thank you! I love your blog! I will drop you a message, I am glad you have found my blog useful! πŸ™‚ Keep your chip up πŸ™‚ x

  4. Monica July 28, 2012 at 2:42 am #

    HI Stacy,

    Your story sounds very similar to mine. I was 17 though and 35 when I finally decided it was time to have surgery after an unsuccessful rectal-vaginal fistula repair. I to have had a complete removal of my colon, rectum and anus. It took several months to get the hang of it all but I did and never looked back. There was even a point when I wonder why it took so long to do it. I knew I was ok at that point. Thanks for sharing and best wishes always.

    Monica

  5. Terina October 15, 2012 at 5:38 am #

    Wow Stacey – you are amazing – as is your blog.

    I’m looking for ways to help my Mum who, as of September 27th, will be living with a colostomy bag….

    How can I support her? Help her? Help her find peace with this?

    She’s still recovering from surgery – and due to a fever and severe this cramping this morning, she was readmitted to the hospital.

    I just feel helpless….. If you have any suggestions/ideas/recommendations, I would greatly appreciate hearing from you.

    Once again, thank you,
    Terina

  6. Daisy March 13, 2013 at 2:50 am #

    I love your blog. So honest and optimistic. There needs to be more people in the world like you! Keep doing what you’re doing. x

    • staceystoma May 31, 2013 at 10:41 pm #

      Aw thank you Daisy! πŸ™‚ How nice.

  7. Andrea Bain April 19, 2013 at 3:42 pm #

    Hello Amy,
    I discovered your wonderful and inspirational writing online today on your website, and decided to feature you on our Facebook page today. You can find it by searching β€œStoma Stifler” on Facebook.
    I like your β€œOstomism not Pessimism” quote. Keep up the great work of being such an inspiration to new and veteran ostomates alike.

    After all you have been through, have you been able to connect with other young ileostomates? Are you a member of online communities our community groups that support ostomates?
    Absolutely all the best to you.

    Sincerely,
    Andrea Bain
    BEAMM LLC
    http://www.stomastifler.com
    Facebook: Stoma Stifler

  8. Emma August 13, 2013 at 10:13 am #

    You really are an inspiration, I myself have a permanent Ileostomy. I nearly died on 4 different occasions have had 29 operations and god knows how many tests an medications I’ve had its been 16 years for me. I currently take 32 medications and have no large colon and only half my small intestines. I can only eat baby portions which doesnt give much option and I usually am violently vomit. I have hardly any clothes cause don’t feel comfy. I have several other conditions including being left infertile because of adhesion’s and cant cope with working so I am scrapping through uni (only just). what advice would you give me?

    • staceystoma August 19, 2013 at 12:52 pm #

      Hi Emma,

      Thanks for your comment!

      Wow you certainly are a brave lady! I can only really give you an opinion from the experiences I have had so the best piece of advice I could give you is to take every day at a time and be proud of even the littlest things you achieve, NEVER be too hard on yourself πŸ™‚ The fact you are keeping on with Uni is an inspiration in itself, it must be so hard for you!

      Have you tried wearing floaty tops or looser clothes? I find the tops that are fitted around the bust but are floaty underneath that are fab for giving you a bit of extra confidence. I wear them with leggings usually πŸ™‚
      x

  9. Anele October 24, 2013 at 3:57 pm #

    Hi, jst discovered ur blog nd I’m loving it. So useful.
    I’m 21 too with an ileostomy.. Was sooo hard adjusting to everythng and accepting the 2nd chance I got thru ths surgery.

    :)so good to see that I’m nt alone nd there are people my age going thru similar things..

    Take care, u myt hav jst inspired me to mayb start my own blog too.

    • staceystoma November 16, 2013 at 1:29 am #

      You’re welcome, thank you for reading πŸ™‚ x

  10. Latrell Arrington December 24, 2013 at 2:13 am #

    I just came across your blog and love it…I’m a 31yr. old female with CD and the story is almost identical. For so long my stoma was a gift and a curse…but now I wouldn’t have it any other way. Your and inspiration and brave

  11. Travis December 28, 2013 at 2:57 am #

    Thanks. I have had my ileostomy for a month. I have enjoyed reading your past post. They have been very informative and helpful. Thank you again and I look forward to more info. You are an inspiration to me.

    • staceystoma December 28, 2013 at 1:54 pm #

      You’re welcome! Thank you for your comment πŸ™‚ I’m glad you enjoy reading

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