Another year with Stacey complete!

30 Dec

Hi readers,

I hope you all had a good Christmas!

I thought with it being the penultimate day of the year I’d do my final post of 2013 and just summarise how the year has been for me living with a stoma.

Compared to the many years of being ill before, it has been a great year for me & I have accomplished even little things that I could have never dreamt of before having my surgery, such as eating a full meal, having a good night’s sleep free of pain and planning a trip out that doesn’t revolve around toilet stops! I’ve had Stacey for 2 years and nearly 5 months now – time flies!

I have only really had a few minor issues with my stoma in 2013; these being the muscle cramps behind it which I got prescribed tablets for, really thick output, my iron levels and more recently, a few irritating bag leaks. Luckily, I haven’t suffered that much the last month or so with the muscle cramps but when I do I find that the Alverine I was prescribed really helps. I also had a few weeks where my output was uncomfortably thick – I felt like it was really struggling to come out at times and it made me feel really clogged up inside. This seemed to pass within a week or so by minimising foods that bulk you up such as carbohydrate-rich foods like pasta and potatoes and making sure that I had plenty of clear fluids. I also found fizzy drinks helped too with the high sugar content and gas to push things through. My iron levels I have always struggled with, before and after surgery. When my Crohn’s Disease was active I suffered with Anaemia of Chronic Disease; this is anaemia usually typically found in those with chronic health problems/disease and/or those with inflammation present in their bodies, usually in higher quantities, such as in moderate-severe Crohn’s Disease in the intestines. There are many ideas and or arguments into understanding what causes anaemia of chronic disease I understand but it seems to be that there are more than likely a few or several contributing factors to it, such as diversions of iron in the body or problems with iron stores due to disease. I had my iron infusion a week and a half ago now and so far haven’t noticed a difference, but I was told it can take up to a month in some people for them to start noticing the benefits or even longer, so fingers crossed that I do start to notice. In the New Year, I will be organising a blood test to check my iron stores within my body again and see how much the transfusion has helped internally. On another issue, the past few weeks I have had five bag leaks, which is a lot for me considering up until then I had only had a handful over the first few years. I can’t really think of what has caused them; my guess being that my stoma has been a bit up and down in size and the fact that I’ve not checked enough that the adhesive ring of the bag that fits around the stoma has not adhered to the skin properly due to me either being in a rush or not getting it properly over my stoma all the way round, causing output to leak underneath. The Coloplast bags themselves that I use are great and are very secure – the adhesive is the best I have found and works well for a lot of people I know with ostomies compared to other bags. Despite these issues, I would not swap having my stoma for the world because it really did save my life, no exaggeration about it. The issues I have encountered are extremely minor compared to what I have had to deal with before.

2013 has also introduced me to more inspirational people who amaze me with what they cope with and still manage to smile. I have spoken to many going through surgery and kept in contact with those I have known before this year and every one continues to amaze me and really inspire me with the things they achieve, no matter how small the things may seem to them. The positive attitudes of these people is really inspiring and shows you that no matter what tries to stop you, you deserve to reach your dreams just as much as anybody else, in fact, if anything, more than your average person.

For 2014, I saw a really good idea on the internet the other day that would help a lot of us, especially for when you have your down days. At the start of January, buy a jar or find a box (doesn’t have to be huge) and when something good or positive happens, no matter no small, write it down on a small piece of paper, fold it up and put it in the jar. When you feel down or downhearted, open the jar and read what you have accomplished so far; the more you get, the more you will smile and the more it will remind you just what you can achieve and why you should smile. What a lovely idea! πŸ™‚

December 2013 :)

December 2013 πŸ™‚

Before I finish my last post, here’s a big ‘thank you’ to all those who have supported me this year, it means a great deal to me! Here’s to all the ostomates out there and the inspiring and beautiful ladies on the ‘Osto-MY fashion’ group on Facebook and my co-admins; Gemma, Amber and Becky – lots of love to you! Also, here’s to my Uncle, I miss you so much & you inspire me every day.

I hope you all have a fab New Year and that 2014 is a truly great year for you all; make itΒ yourΒ year!

Thank you to my readers for all your continued support and I hope you continue to enjoy reading.

Best wishes & Happy New Year!

Amy & Stacey Stoma πŸ™‚ x x

Ostomism Not Pessimism β„’Β 

Dec 2012

December 2012, a year flies!


7 Responses to “Another year with Stacey complete!”

  1. David Cross December 30, 2013 at 8:57 pm #

    All the best to you two years now with mine but having problems seeing people in new year just not eating and having a lot of pain god bless you from an old man who will not give up don’t let anything get you down there is always people worse than us

    • staceystoma December 30, 2013 at 8:59 pm #

      Thanks for your comment David! Sorry to hear you are having problems, I hope you get sorted. As for eating, little and often, things that are easier to digest. I know how hard it can be, trust me! Very true.
      All the best for 2014 πŸ™‚

    • staceystoma December 30, 2013 at 11:17 pm #

      Hey don’t apologise! πŸ™‚

  2. Joelle December 30, 2013 at 11:27 pm #

    Hi Amy, feel free not to publish this but I wanted to say hi. I’ve just stumbled on your blog and the positivity oozes off the page. It’s very encouraging. I’ve had a Stoma for 18months. It saved my life too. I call her Ruby. But we have very different health histories and it’s taken me a long time to love my Stoma. I can’t say yet that I do. But I do try and find the humour in it. For the first year I had up to 4 bag leaks a day. I called them poonamis. Although one day there was definitely a poocano. πŸ™‚ happy new year to you and I look forward to reading of your and Stacy’s adventures. Joelle x

    • staceystoma December 31, 2013 at 12:30 pm #

      Hi Joelle,
      Thanks for your lovely comment.
      Having a stoma is always different from person to person and I am glad you try to see the humour side in it and keep smiling, we have to laugh at these things or we just crumble! You’re a strong woman, be proud of yourself. Never hesitate to drop me an e-mail on if you want to chat!

  3. Travis December 31, 2013 at 7:31 am #

    Hey. Thank you for sharing your experiences with us. I’ve had mine for just over a month and I am still getting used to what is best for me to eat and on what is the best time to change my pouch. I change it on the 5th day now. I use a hollister one piece drainable. What do you recommend and why? I also thought that fizzy drinks were not good for my stoma. I think I will try one and see how it reacts.

    • staceystoma December 31, 2013 at 12:28 pm #

      Hi there,
      I wouldn’t recommend fizzy drinks just yet being so soon after surgery, give your bowel a while to settle down from the trauma it’s been through & consult with your doctor/stoma nurse before trying πŸ™‚
      I use the Coloplast Sensura One Piece Drainable but I change mine usually every day, this works best for me as I don’t feel clean if I don’t and I find that the air filters don’t work that great if I don’t change as often. I personally think one piece bags are the best but there are other things such as two piece bags where the baseplate and bag are separate and you can click a new bag on and off without having to change the sticky baseplate too. I don’t get on with these very well so I use the one piece πŸ™‚
      Have a good New Year πŸ™‚

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