Archive | December, 2012

As 2013 approaches…

31 Dec

2012 has been both a happy & sad year. 

I’ve had my ups and downs health wise, with University, with things in general and had days were things couldn’t seem to get much worse but I have also had plenty of good days which I could never have dreamt of having before Stacey Stoma. I’ve enjoyed meals out, been able to go places without stopping every few minutes with stomach pain or for the toilet, been away to London with Mum, travelled many places in the UK, & made some great friends amp; ♥

Sadly, I lost my Uncle, as I mentioned before. I miss him so much but I know I can live life to the full with my stoma just as he did.

Have a lovely evening folks & here’s to a happy and healthy 2013!

Thank you again to my subscribers and readers.

Love Amy & Stacey Stoma xx

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Oh hi 8 stone! We finally meet again… This time without steroids.

19 Dec

Wahoooo! So I’ve just been on the scales and I’m finally at the 8 stone mark, without any steroids or medication for my Crohn’s! Really pleased.

I have always struggled with my weight, as most people with IBD do & have always struggled to keep it stabilised and put weight on, especially without steroid intervention and other nasty side effects.

The most I’ve ever weighed was around 8 and a half/9 stone, so this for me is quite an achievement. Also, considering I was barely 5 stone just over a year ago before and after my operation, I’d say a 3 stone gain is good going! My family and a few of my IBD friends have said to me how it’s rare to hear a woman complaining about not being able to put on weight instead of lose it, and that’s very reflective of my struggle. I have never wanted to lose weight, it is a dream to actually wear size 8 jeans without a belt and lots of baggy material literally hanging off me. Of course, I used to get the obnoxious people as you do in life, who used to assume I was starving myself and I was anorexic, but then again, just shows how naive and horribly judgemental some people can be. That’s a major thing with our society today; everyone’s too busy jumping to conclusions from what they see, or what they’ve heard, rather than making an informed judgement based on the true facts. Something my Dad always says to me, which has become a bit of a laugh and in-joke, is that when you’re dealing with anything in life, you have to be pragmatic about the situation. As much as we have a laugh that it’s pretty much become my Dad’s catchphrase (one of many!), I feel there is a great deal of truth in that statement in life.

I still get people telling me I’m skinny at the moment, but to be honest, I’m content with the weight I am. Yes, I am not large and I am thin and small framed, but that is who I am and probably who I will always be, that’s pretty much inevitable. People don’t realise how, especially when you’re having a down day, comments like that can hurt, but I’m learning to just remember how far I’ve come, feel pleased in myself and smile. I know the people who have been with me for any length of time in my long journey with IBD are proud of me, and that’s all that matters. My phenomenal family and my lovely and supportive friend, Sophie have been my rock through the bad times recently and not so recently. I have a great deal of time and love for them. Also, my support group that I run with my friend Meg, is just fab, everyone is so friendly and encouraging and we always manage to have a giggle!

If I don’t post before then, I hope 2013 brings you health, happiness and lots of good things! I’m sure hoping it is the year for me…about time please! 🙂

Best wishes & seasons greetings!

Amy & Stacey Stoma x x

Hospital appointment with the dietitian

7 Dec

I went to see my dietitian yesterday at hospital. Been having a few issues with Stacey again with what has felt to be lots of trapped wind, pressure, spurts of watery output and dehydration. What set this off, I do not know, it could be a bug, something I ate, partial obstruction again, who knows? She’s been a bit better today after the initial feeling sick and horrible this morning.

One of the issues at the moment is that I can’t seem to put on weight no matter how hard I try. My appetite keeps changing as well. One day I can feel like eating loads then the next day I’m just not interested. There seems to be a few things that don’t agree with Stacey the best and give me some form of hassle, such as onions, lettuce, apple, Weetabix and green vegetables give me lots of wind which gets quite uncomfortable.

The dietitian was very helpful at my appointment and basically said that we have to try and get my eating habits into more of a regular routine. This is because my stoma needs to have a regular pattern so that it can get used to when it’s outputting and almost learn when to expect food etc, hopefully narrowing out some of my problems in the long run if I can manage to get some sort of routine. This is easier said than done, as I never feel like eating in a morning and if I try to it can make me feel quite sick, but I guess we have to try these things and have a good go at them before giving up if there’s a chance it might help me in the long run. My dietitian said ideally I should be having 3 meals a day and eating small things in between if I can so that Stacey can adapt to a routine and I guess, in a sense, so that my bowel doesn’t sleep for a lot of the day. By having breakfast, this means that my digestion process will be kicked off a lot earlier in the day, as opposed to leaving out breakfast and my digestive system and stoma not really having to bother with anything until 1 or 2pm.

I’ve been advised to keep away from green vegetables especially at the moment, and fruit with seeds, skins or pith, such as satsumas and strawberries, grapes and apples. This is because the skin and pith of the fruit and vegetables contains the main source of fibre. I’ve been advised to not have a high fibre diet, but that fruit in fruit juice in tins where the pith and skins have been removed should be fine.

Making sure I have plenty of fluids is another important matter. Ideally, because I have an ileostomy, I should be aiming to drink round about 2.5 litres a day…Mad this seems! This, however, is because of my body’s inability to reabsorb what I drink and get what it needs from it as opposed to a person who has their colon.

Typical digestive system of someone with a permanent ileostomy.(Credit to Convatec for this image)

Typical digestive system of someone with a permanent ileostomy (No colon or rectum etc)
(Credit to Convatec for this image)

That’s like drinking 1 and a quarter big bottles of cola…I just don’t see that it’s possible for me, that and the fact that I suspect I would be needing to empty my bladder all the time, and I’ve just escaped years spent on the toilet. My dietitian said this will be the case at first, but once my kidneys adjust to having a lot more fluids then it should calm down and I won’t need to go as often. The drinks I’ve been advised to have a lot of are things such as the flat sports drinks (Lucozade Sport and Powerade), squash, fizzy drinks, tea with sugar, as they provide extra calories especially. Sports drinks such as Powerade also have salt in them, which is vital for me as I need extra salt because of the fact that my colon is missing.so the nutrients I need need a lot more help being reabsorbed into my body as opposed to a person with their digestive system intact.

A lot of information to take in and a lot of trial and error and perseverance will be required. Even though I had my operation over a year ago, my dietitian said that my anatomy will still be adjusting to its new plumbing, so to persevere and give it time and try to get myself into a routine with my food and drink.

I hope you are all well. One more week left for me at University before I break up for Christmas, which will involve lots of work sadly. Going to visit my boyfriend for a while though so I am looking forward to that! 🙂

Best wishes.

Amy & Stacey Stoma xx